Project Categories

Genomics, Medicine and Race: Political Valences and Health Policy Implications

Award Year: 2009 Investigator: Jennifer Hochschild
The use of genomics in medicine has the potential to transform concepts of racial identity, making it immaterial, highly salient, or possibly both in different circumstances. Treatment for genetic diseases may eventually be tailored to fit an individual's genome, in which case the patient's self-defined race will not matter.

Heel Sticks and Amnios: Disjunctures and Discrepancies in Prenatal and Newborn Genetic Screening

Award Year: 2005 Investigator: Rachel Grob, Barbara Katz Rothman
Genetics and genetic testing are often discussed as revolutionizing modern medicine, but so far this revolution has largely occurred in the world of medical care for pregnant women and newborns. Co-investigators Barbara Katz Rothman, Ph.D. and Rachel Grob, Ph.D. examine the expansion of genetic screening and testing for pregnant women and newborns, the differences between optional services and mandatory screening requirements, and the unintended consequences of screening and testing.

Use of Racial/Ethnic Identity in Medical Evaluations and Treatments

Award Year: 2005 Investigator: Richard Cooper, Jay Kaufman
Views about the importance of race in clinical medicine have come full circle in the past five years as the field of "pharmacogenomics" has ushered in the promise of medical treatments tailored to a patient's particular genetics. Jay S. Kaufman, Ph.D. and Richard S. Cooper, M.D. examine the re-emergence of race as a surrogate for genetic factors that can determine risk of disease, prognosis, and response to treatment.

The Impact of Gene Patents on the Delivery of Health Care Services

Award Year: 2002 Investigator: Lori Andrews
Lori B. Andrews, J.D. has studied a wide range of bioethical issues, such as newborn screening, infertility treatment, cloning, stem cell research, and patent policy. For her Investigator Award project, The Impact of Gene Patents on the Delivery of Health Care Services, Professor Andrews examines how gene patents affect genetic research and the availability, cost, and quality of genetic tests and treatments.